P8 My pneumothorax journey. A primary spontaneous pneumothorax patient information resource

Le résumé fourni par la source

Introduction On the back of recent randomised trials, there has been a paradigm shift in the management of primary spontaneous pneumothorax (PSP), towards conservative and ambulatory treatment options. Due to the clinical equipoise between different options, it is important that patients are actively involved in the management plan and have appropriate information resources available at the time to aid decision making. It is important to ensure patients are involved in the production of such information resources – Patient and Public Involvement and Engagement (PPIE). Therefore, the aim of this project was to co-produce patient information resource on PSP and related treatment options. Methods Pleural physicians and nursing staff from Manchester University NHS Foundation Trust and University Hospital of North Midlands NHS Trust worked in collaboration with the West Midlands Academic Health Science Network (WMAHSN) and NHS England Accelerated Access Collaborative (AAC). The initial draft leaflet was discussed with patients from both hospital sites via a focus group and online survey for those who could not attend; the feedback was then used to revise the leaflet. For greater utility across diverse patient populations, leaflet has been translated into Urdu, Arabic, Polish and Romanian as well as Easy Read format. These languages are a combination of the most commonly requested via interpreter services in the two Trusts. The key information from the leaflet was then used to produce an animated video. This involved scriptwriting, story-boarding, character design, background theme and voice over. Results The final product of this piece of work is co-produced patient information leaflets in multiple languages and Easy Read format, as well a 2-minute video animation exploring definitions, aetiology, symptoms, investigations and management options. All the resources are available for free for patients to access on the WMAHSN website (via the QR code). The leaflets can be viewed online or printed. Conclusion We successfully produced an online resource to help patients, who present to the hospital with primary spontaneous pneumothorax, to gain better understanding and aid decision making with support from treating clinicians.

Ce résumé expose les affirmations des auteurs. BNTIC ne l’interprète pas comme une validation indépendante des résultats.