Recommendations for patient involvement in health technology assessment in Central and Eastern European countries
Rattachement africain : hu, bg, fr, be, ua, si, es, sk, pl, ro, gb, nl. Niveau de preuve : code pays fourni par la source.
Le résumé fourni par la source
Introduction: Meaningful patient involvement in health technology assessment (HTA) is essential in ensuring that the interests of the affected patient population, their families, and the general public are accurately reflected in coverage and reimbursement decisions. Central and Eastern European (CEE) countries are generally at less advanced stages of implementing HTA, which is particularly true for patient involvement activities. As part of the Horizon2020 HTx project, this research aimed to form recommendations for critical barriers to patient involvement in HTA in CEE countries. Methods: Built on previous research findings on potential barriers, a prioritisation survey was conducted online with CEE stakeholders. Recommendations for prioritised barriers were formed through a face-to-face workshop by CEE stakeholders and HTx experts. Results: A total of 105 stakeholders from 13 CEE countries completed the prioritisation survey and identified 12 of the 22 potential barriers as highly important. The workshop had 36 participants representing 9 CEE countries, and 5 Western European countries coming together to discuss solutions in order to form recommendations based on best practices, real-life experience, and transferability aspects. Stakeholder groups involved in both phases included HTA organisation representatives, payers, patients, caregivers, patient organisation representatives, patient experts, health care providers, academic and non-academic researchers, health care consultants and health technology manufacturers/providers. As a result, 12 recommendations were formed specified to the CEE region's context, but potentially useful for a broader geographic audience. Conclusion: In this paper, we present 12 recommendations for meaningful, systematic, and sustainable patient involvement in HTA in CEE countries. Our hope is that engaging more than a hundred CEE stakeholders in the study helped to spread awareness of the importance and potential of patient involvement and that the resulting recommendations provide tangible steps for the way forward. Future studies shall focus on country-specific case studies of the implemented recommendations.
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Le contrôle bibliographique ouvert
DOI retrouvé dans Crossref DOI retrouvé ; titre concordant.
- Titre Crossref
- Recommendations for patient involvement in health technology assessment in Central and Eastern European countries
- Date Crossref
- 03/07/2023
- Éditeur
- Frontiers Media SA
- Type
- journal-article
Ce recoupement confirme des métadonnées liées au DOI. Il ne confirme ni la méthode ni les conclusions de l’étude, et il ne compte pas comme une seconde source scientifique indépendante.
Où se fait cette recherche
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Syreon Research Institute (Hungary) pays non établi dans la noticeEntreprise
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Medical University of Sofia pays non établi dans la noticeUniversité ou école supérieure
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European Organisation for Rare Diseases pays non établi dans la noticeOrganisation à but non lucratif
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European Organisation for Research and Treatment of Cancer pays non établi dans la noticeOrganisation à but non lucratif
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Ministry of Health Health Technology Assessment Department of State Expert Centre pays non établi dans la noticeOrganisme public
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University of Ljubljana pays non établi dans la noticeUniversité ou école supérieure
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Bioef - Fundación Vasca de Innovación e Investigación Sanitarias pays non établi dans la noticeOrganisation à but non lucratif
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Comenius University Bratislava pays non établi dans la noticeUniversité ou école supérieure
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Medical University of Warsaw Department of Experimental and Clinical Pharmacology pays non établi dans la noticeUniversité ou école supérieure
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Universitatea de Medicină pays non établi dans la noticeUniversité ou école supérieure
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National Center of Infectious and Parasitic Diseases pays non établi dans la noticeUniversité ou école supérieure
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Semmelweis University Centre for Health Technology Assessment pays non établi dans la noticeUniversité ou école supérieure
Syreon Research Institute (Hungary), Medical University of Sofia et European Organisation for Rare Diseases, avec 9 autres affiliations.
Une affiliation ne permet pas de déduire la nationalité d’un auteur.