When a baby is diagnosed at high risk of cerebral palsy: understanding and meeting parent need
Rattachement africain : au. Niveau de preuve : code pays fourni par la source.
Le résumé fourni par la source
PURPOSE: To explore the experiences and needs of parents with an infant diagnosed at risk of cerebral palsy (CP) and to receive feedback on a new online support program (Parenting Acceptance and Commitment Therapy; PACT). MATERIALS AND METHODS: Eleven parents from eight family dyads (8 mothers, 3 fathers) with infants under 24 months of age (age range 10-24 months) recently diagnosed as at risk of CP as well as fourteen clinicians participated in this qualitative study through interviews. RESULTS: Parents reported conflicting emotions and grief. Further, they reported that they wanted honesty, support and normalisation of their experiences from clinicians. Parents pointed to a gap in service delivery in terms of non-pathologising psychological support specific to their needs. Clinicians reported a lack of skills in supporting distressed parents. Parent feedback on PACT was positive, with parents receptive to the online delivery. CONCLUSIONS: Parents want acceptance without pathologisation, honesty, and flexible support. Clinicians working with children at risk of CP need training in grief awareness and support for their own coping. Health services should consider building better parental support into their systems of care.IMPLICATIONS FOR REHABILITATIONParents want clinicians to be honest, supportive and to normalise their griefClinicians in rehabilitation would benefit from up-skilling in grief supportParental support should be built into systems of care for children with cerebral palsy.
Ce résumé expose les affirmations des auteurs. BNTIC ne l’interprète pas comme une validation indépendante des résultats.
Le contrôle bibliographique ouvert
DOI retrouvé dans Crossref DOI retrouvé ; titre concordant.
- Titre Crossref
- When a baby is diagnosed at high risk of cerebral palsy: understanding and meeting parent need
- Date Crossref
- 13/11/2022
- Éditeur
- Informa UK Limited
- Type
- journal-article
Ce recoupement confirme des métadonnées liées au DOI. Il ne confirme ni la méthode ni les conclusions de l’étude, et il ne compte pas comme une seconde source scientifique indépendante.
Où se fait cette recherche
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The University of Queensland Queensland Cerebral Palsy and Rehabilitation Research Centre pays non établi dans la noticeUniversité ou école supérieure
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Cerebral Palsy Alliance pays non établi dans la noticeOrganisation à but non lucratif
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Children's Health Queensland Hospital and Health Service pays non établi dans la noticeÉtablissement de santé
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Queensland Children’s Hospital pays non établi dans la noticeÉtablissement de santé
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The School of Psychology pays non établi dans la noticeUniversité ou école supérieure
Queensland Cerebral Palsy and Rehabilitation Research Centre — The University of Queensland, Cerebral Palsy Alliance et Children's Health Queensland Hospital and Health Service, avec 2 autres affiliations.
Une affiliation ne permet pas de déduire la nationalité d’un auteur.