Designing a Patient-Friendly Website for Newly Diagnosed Cancer Patients with the Participatory Health Research Approach
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Le résumé fourni par la source
High-quality and user-friendly patient information material (PIM) is essential for understanding and accepting a new care programme. When optimising the PIM of the integrated, cross-sectoral psycho-oncological (isPO) care programme, the design of the fifth element of the patient information strategy-the patient-friendly website-was still pending. In this paper, the iterative design process of the patient-friendly isPO website is described. We applied the participatory health research (PHR) approach to enable high levels of participation of its respective end-users (e.g., cancer survivors), service providers, and experts. The design included six steps: (1) initiation, (2) planning, (3) initial idea exploration, (4) creation of a first working version, (5) three optimisation loops, and (6) dissemination. An exploratory mixed-methods design has been used. Qualitative data collection included document analysis, interviews, and participatory action research (PAR) loops with focus groups. Finally, the quality of the newly designed website was quantitatively assessed with the UPIM-Check, a user-friendly instrument for assessing and optimising PIM. The PHR approach was indispensable for the design of our needs-oriented, patient-friendly website. Participants' high levels of participation strongly contributed to the products' quality. The final descriptive statistical evaluation shows that the final website was rated very good on average by its end-users.
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Le contrôle bibliographique ouvert
DOI retrouvé dans Crossref DOI retrouvé ; titre concordant.
- Titre Crossref
- Designing a Patient-Friendly Website for Newly Diagnosed Cancer Patients with the Participatory Health Research Approach
- Date Crossref
- 10/02/2022
- Éditeur
- MDPI AG
- Type
- journal-article
Ce recoupement confirme des métadonnées liées au DOI. Il ne confirme ni la méthode ni les conclusions de l’étude, et il ne compte pas comme une seconde source scientifique indépendante.
Où se fait cette recherche
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University of Cologne pays non établi dans la noticeUniversité ou école supérieure
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Faculty of Human Sciences and Faculty of Medicine Institute of Medical Sociology pays non établi dans la noticeUniversité ou école supérieure
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District Association of Larynx Operated Aachen e.V. pays non établi dans la noticeOrganisation à but non lucratif
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Vocational School University Hospital Aix-la-Chapelle pays non établi dans la noticeUniversité ou école supérieure
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House of the Cancer Patient Support Associations of Germany (HKSH-BV) pays non établi dans la noticeOrganisation à but non lucratif
University of Cologne, Institute of Medical Sociology — Faculty of Human Sciences and Faculty of Medicine et District Association of Larynx Operated Aachen e.V., avec 2 autres affiliations.
Une affiliation ne permet pas de déduire la nationalité d’un auteur.