Assessing patient satisfaction with the cystic fibrosis telehealth service
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Introduction/Aim: Telehealth (via videocall) was rapidly implemented by the South Australian Adult Cystic Fibrosis (CF) Service in March 2020 due to the Novel Coronavirus 2019 pandemic (COVID-19). Home spirometers were distributed as part of objective patient assessment. Our aim was to assess patient satisfaction with the telehealth service in CF multidisciplinary clinic via online survey. Methods: All patients of the CF service were invited to complete an online survey designed to assess satisfaction with telehealth, which was undertaken through the consumer organization Cystic Fibrosis South Australia. A quantitatively driven concurrent mixed-methods design was chosen, with statistical analysis using IBM SPSS Statistics for Windows v.26 and coding of unstructured responses to generate themes for thematic analysis. Results: To date 57 from a cohort of 160 patients (35.6%) completed the survey, with some item non-responses. 37/57 (64.9%) of participants were aged ≤35yo, 42/53 (80.7%) had 2 telehealth appointments, and 46/53 (86.7%) found it easy/very easy to access. 18/48 (37.5%) of participants had problems with audio/visual dropout. Despite this 48/52 (92.3%) felt satisfied or very satisfied that the CF team were engaged in their care via telehealth, with just under half utilizing a home spirometer at the time of the survey. 38/50 (76%) found that telehealth was more convenient than an in-person appointment with significant time saved. The thematic analysis added context and depth to analysis of the quantitative data by identification of six key themes of convenience, ease of access, maintaining the therapeutic relationship, comprehensive care, safety, and patient centred care. Conclusion: Most patients reported high satisfaction with telehealth and would like a hybrid clinic with the option of telehealth or in person review for clinics into the future.
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