Informal Caregiving for People With Life-Limiting Illness: Exploring the Knowledge Gaps
Rattachement africain : ca. Niveau de preuve : code pays fourni par la source.
Le résumé fourni par la source
Background: People with life-limiting illness are increasingly having more care provided to them by informal caregivers (ICs) such as family members and friends. Although there is a substantial amount of literature surrounding informal caregiving, there is a paucity of research from a hospice palliative care angle. To address this knowledge gap, this scoping review explored the effects of/challenges to informal caregiving at the end of life in Canada. Methods: Scoping review of the literature following Arksey and O’Malley’s framework. Key healthcare and social sciences databases alongside the gray literature were searched. Relevant scholarly and gray literature sources from 2005 to 2019 were screened for inclusion criteria, and a thematic content analysis employed to summarize findings. Results: Of 2,717 initial search results, 257 distinct full text articles were obtained. Following deduplication and screening, 33 met inclusion criteria. Four major themes were identified: (1) Physical health challenges, (2) Psycho-socio-spiritual health challenges, (3) Financial issues, and (4) Health system issues. Gender of ICs was also found to be an important contributor to the differing effects of providing support. Conclusions: This review raises awareness toward ICs regarding the numerous physical, psycho-socio-spiritual, financial, and health system challenges faced during care for people with life-limiting illness. The knowledge gained will inform and advance future practice, policy, and research. Application to interventions (such as caregiver benefits) will assist to improve informal caregiving experiences and outcomes alongside quality of life. Further research is required to understand these unique experiences and the challenges of minority IC populations.
Ce résumé expose les affirmations des auteurs. BNTIC ne l’interprète pas comme une validation indépendante des résultats.
Le contrôle bibliographique ouvert
DOI retrouvé dans Crossref DOI retrouvé ; titre concordant.
- Titre Crossref
- Informal Caregiving for People With Life-Limiting Illness: Exploring the Knowledge Gaps
- Date Crossref
- 20/01/2021
- Éditeur
- SAGE Publications
- Type
- journal-article
Ce recoupement confirme des métadonnées liées au DOI. Il ne confirme ni la méthode ni les conclusions de l’étude, et il ne compte pas comme une seconde source scientifique indépendante.
Où se fait cette recherche
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University of Toronto Health Studies Program pays non établi dans la noticeUniversité ou école supérieure
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CARE Canada pays non établi dans la noticeOrganisation à but non lucratif
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Canadian Hospice Palliative Care Association pays non établi dans la noticeInstitution
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University of Alberta pays non établi dans la noticeUniversité ou école supérieure
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Mental Health Commission of Canada pays non établi dans la noticeOrganisation à but non lucratif
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University of Ottawa Department of Pediatrics pays non établi dans la noticeUniversité ou école supérieure
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National Initiative for the Care of the Elderly (NICE) pays non établi dans la noticeInstitution
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Quality End-of-Life Care Coalition of Canada (QELCCC) pays non établi dans la noticeInstitution
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Canadian Home Care Association (CHCA) pays non établi dans la noticeOrganisation à but non lucratif
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Faculty of Medicine and Dentistry pays non établi dans la noticeUniversité ou école supérieure
Health Studies Program — University of Toronto, CARE Canada et Canadian Hospice Palliative Care Association, avec 7 autres affiliations.
Une affiliation ne permet pas de déduire la nationalité d’un auteur.