Parkinson's disease patients' needs during the COVID‐19 pandemic in a red zone: A framework analysis of open‐ended survey questions
Rattachement africain : it. Niveau de preuve : code pays fourni par la source.
Le résumé fourni par la source
BACKGROUND AND PURPOSE: During the first phase of the COVID-19 pandemic, a lockdown was imposed in Italy. The aim of this study was to investigate the perceptions, feelings and unmet needs of Parkinson's disease (PD) patients who experienced the 2-month lockdown in a "red zone" in the northern part of Italy during the COVID-19 outbreak. METHODS: The study had a descriptive design that used a cross-sectional online survey which included open-ended questions to elicit responses on the participant's feelings concerning their risk of contracting coronavirus, how their physical activity had changed, and their personal needs, dictated by their condition, which were not met in this pandemic period as compared to previous periods. Demographic data were analysed using descriptive frequencies, while the open-ended questions were analysed using thematic framework analysis. RESULTS: The study included 103 participants (63 men/40 women [61.17 vs. 38.83%]). Framework analysis led to the identification of four main themes: (i) fearing the risk of contracting coronavirus; (ii) reduction of physical activity; (iii) perception of the risk of not being able to access outpatient clinics or support services; and (iv) negative experiences of the important reduction in socialization. The perceptions of unmet needs appeared to be greater than the actual experience, particularly for the reduction in physical activity and the interruption of contacts with the neurologist and other specialists. CONCLUSIONS: This study highlights how perceptions and actual experience shape the meaning of living with PD during the pandemic. Worth noting is the divergence between perceptions and real impact in some aspects of the COVID-19 outbreak.
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Le contrôle bibliographique ouvert
DOI retrouvé dans Crossref DOI retrouvé ; titre concordant.
- Titre Crossref
- Parkinson's disease patients' needs during the COVID‐19 pandemic in a red zone: A framework analysis of open‐ended survey questions
- Date Crossref
- 06/02/2021
- Éditeur
- Wiley
- Type
- journal-article
Ce recoupement confirme des métadonnées liées au DOI. Il ne confirme ni la méthode ni les conclusions de l’étude, et il ne compte pas comme une seconde source scientifique indépendante.
Où se fait cette recherche
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University of Modena and Reggio Emilia Clinical and Experimental Medicine PhD Program pays non établi dans la noticeUniversité ou école supérieure
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Azienda Sanitaria Unità Locale di Reggio Emilia pays non établi dans la noticeÉtablissement de santé
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Istituti di Ricovero e Cura a Carattere Scientifico pays non établi dans la noticeÉtablissement de santé
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Neurology Unit Neuromotor & pays non établi dans la noticeInstitution
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Scientific Directorate Azienda USL ‐ IRCCS di Reggio Emilia Reggio Emilia Italy pays non établi dans la noticeInstitution
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Qualitative Research Unit Azienda USL ‐ IRCCS di Reggio Emilia Reggio Emilia Italy pays non établi dans la noticeStructure de recherche
Clinical and Experimental Medicine PhD Program — University of Modena and Reggio Emilia, Azienda Sanitaria Unità Locale di Reggio Emilia et Istituti di Ricovero e Cura a Carattere Scientifico, avec 3 autres affiliations.
Une affiliation ne permet pas de déduire la nationalité d’un auteur.