The ASCO Breast Cancer Registry pilot: Implementation of a multisite community practice registry and treatment plan/summary program.

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6101 Background: Current approaches to quality assessment require retrospective data collection that limits opportunities for quality improvement. The goal of the ASCO Breast Cancer Registry (BCR) Pilot was to evaluate the feasibility and acceptability of prospective data collection to support quality assessment in community oncology practices. In addition, data were used in real time to create treatment plans and summaries to be shared with patients. Methods: Twenty diverse outpatient oncology practices were selected to participate and entered clinical data into the BCR through a web-based tool on each new patient with stage 0-3 breast cancer between 9/09 and 11/10. Using the tool, individual treatment plans and summaries were then created and shared with patients. Practices received practice-specific and aggregate BCR data on 9 quality measures. Practices were surveyed twice, soon after starting the pilot and at the end. Practices received a stipend to offset participation costs. Results: Practices entered 2,014 patients in the BCR (range across practices = 9-276). Detailed information on patient demographic/clinical characteristics and treatment was collected. 52% of practice participants replied to the end-of-pilot survey (52 physicians, 49 staff): 73% were satisfied with the overall BCR and its web-based application; 90% of those who had been involved with creating or communicating the treatment plans/summaries found them useful to improve communication between the medical oncologist and the patient; and 93% had a favorable view of using BCR data for practice quality improvement. 31% expressed concern regarding the time required to accomplish at least one aspect of the pilot and 52% indicated the practice incurred additional costs to meet the requirements of the BCR. Conclusions: Prospective data collection for quality assessment is feasible and enables creation of treatment plans/summaries to enhance communication with patients at the point of care. However, practice burden may limit uptake. Future efforts should focus on broadening practice participation and assessing the cost and impact on patient outcomes. This research was funded by Susan G. Komen for the Cure.

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