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2014 article

Short-term and Long-term Follow-up #1 - Re-assessing Business as Usual in Follow-up

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In relation to reassessing business as usual: I came into the newborn screening program with fresh eyes, this opened the doors for unbiased evaluations on processes and changes that needed to be made. My presentation will start with a brief overview of the Oregon State Public Health lab and the Regional Program we support, leading to my experience over the first year as the Follow Up Coordinator. This will focus on three main points: Correspondence edits, streamlining, and information system updates. Correspondence: most of the educational and follow up letters for providers were created in 2002 with some edits in 2006. This was when MS/MS first started in Oregon and later CAH and IRT were added. The materials were cumbersome and burdened with paragraphs of unnecessary information. The goal was to simplify, make bold headlines and “Action Needed” lists for providers to easily digest the information. I will show examples on slides of changes and present total # of updates including deletion of many different pieces that are significant cost reductions and streamlines processes. Streamlining: Reducing postage costs and office waste. Elimination of redundant processes such as scanning, faxing, and making copies of the same information. Moving away from multiple excel spreadsheets. I will talk about some of the unique changes to our program in regards to Alaska CPT1A variant babies. The goal: reduction in follow up completion timelines. Information systems: Full utilization of IS capabilities have been implemented in the database. Modifications of reporting functions allows for better data collection and historical accuracy. I will present the additions to the database and changes to the structure of reporting functions on confirmed cases.

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