Cure Sickle Cell Initiative recommendations on common data elements for sickle cell disease gene therapy trials
Sophie Lanzkron, Victoria H Coleman-Cowger, Alexis A. Thompson, C. Patrick Carroll et autres
ABSTRACT: The Cure Sickle Cell Initiative (CureSCi), created by the National Heart, Lung, and Blood Institute, has developed data standards to increase interoperability and meta-analysis of studies specifically investigating gene therapy for sickle cell disease (SCD). The aims of the CureSCi Common …
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