Challenges and solutions to complex data governance issues in cross-national, cross-sectoral, multidisciplinary real world health research: a descriptive overview
Miriam Galvin, Mark Heverin, Éanna Mac Domhnaill, Robert McFarlane et autres
Real-world clinical data is generated during clinical engagements. The collection and further processing and mining of clinical information requires consents and navigation of necessary and important data governance processes. PRECISION ALS is an academic industry programme that collects, collates and analyses clinical …
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Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration